M.E News

The hospital support pack translated into Dutch Ondersteuning ME-patiënten in het ziekenhuis.ME Centraal

By David Tuller, DrPH My heart sinks every time I see another ridiculous article from a member of the CBT/GET ideological brigades. They repeat the same bogus arguments that we’ve heard for years—arguments that have already been refuted time and again Trial By Error: Guardian Publishes Response to Boothby O’Neill Read more…

An open response from parents and carers of people with Severe Myalgic Encephalomyelitis to ‘Management of Nutritional Failure in People with Severe ME/CFS: Review of the Case for Supplementing NICE Guideline NG206’ An open response from parents and carers of people with Severe Myalgic Encephalomyelitis

25% ME Group, ME Association, Action for ME and BRAME have collaborated to produce a resource Supporting People with ME/CFS in hospital. As charities, we have been approached by individuals anticipating going into hospital, hence why we produced it. The resource is designed so that you can give the relevant Read more…

Lee McGill (DHSC) joined the Research Working Group today to share an update on the Delivery Plan. We were pleased to hear there has been considerable work happening in the background to process the extremely high level of qualitative data and feedback received and took a long time to process. Read more…

The All-Party Parliamentary Group on ME (APPG) has launched its inquiry into Severe ME. Action for M.E., the ME Association, and the 25% M.E. Group will be working closely to support the APPG throughout the inquiry’s duration. The purpose of the inquiry is to gather evidence to inform a chapter Read more…

In response to requests, the Royal College of Anaesthetics have produced a two page summary of the ME and Anaesthesia Factsheet. Go to https://www.rcoa.ac.uk/patients/patient-information-resources/factsheets-medical-conditions-relating-anaesthesia/me-cfs-anaesthesia-summary

The ME Association is funding a study led by Prof Sarah Tyson of University of Manchester (who also has ME) to develop a clinical assessment toolkit in collaboration with people with ME and clinicians in ME services. Thanks to everybody who took the time and energy to complete the PROMS Read more…