A life cut short by medical neglect

A life cut short by medical neglect: interview with Sarah Boothby, whose daughter Maeve died at 27 of severe ME/CFS https://mecfs-med-ed.org/2023/05/31/a-life-cut-short-by-medical-neglect-interview-with-sarah-boothby-whose-daughter-maeve-died-at-27-of-severe-me-cfs/?fbclid=IwAR2xpAxn4v_ygKJKmbqqLdfc96ldyX0QLI8Pn39PpSANH2tDZ4MlkUwPMnw

ME/CFS CPD | Module

ME/CFS CPD | Module https://www.studyprn.com/p/chronic-fatigue-syndrome A message from course author, Dr Nina Muirhead  BA (Oxon), BMBCh (Oxon), MRCS HOHNS, MEd, PGCipDerm  ME/CFS is one of the most fascinating and important diseases of our time.  In writing this module I have started from scratch. I drew on the international peer reviewed Read more…

#DecodeME Matters

 #DecodeME Matters As many of you are aware our advocacy worker, Helen Baxter, has been assisting people with severe and very severe ME to participate in the DecodeME Study by completing the questionnaire over the telephone with participants who can’t complete it online/on a paper copy. Helen was invited, by Read more…

ME IN THE MEDIA

Exeter mum’s heartbreak as daughter, 27, loses severe ME battle The 27-year-old was sent home to be cared for by her mum An urgent plea for change has been heartbreakingly conveyed by a mother who desperately tried to care for her 27-year-old daughter who died while battling severe Myalgic Encephalomyelitis Read more…