HEALTH Learn about M.E. – free CPD training for health professionals in the UK GENERAL New support for professionals on managing ME-CFS and Long Covid GPs, medical students and allied health professionals in the UK can now access free online training on the diagnosis and management of ME-CFS. At present Read more…
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Organic Disease or Psychosomatic Illness? A Re-Examination of the Royal Free Epidemic of 1955 https://pubmed.ncbi.nlm.nih.gov/33375343/
A long-running battle between patients and therapists over the best way to treat debilitating chronic fatigue was won by the patients back at the beginning of November. In a dramatic U-turn, the NICE guidelines on the best way to treat ME (Myalgic Encephalitis)/ CFS (Chronic Fatigue Syndrome) were reversed. https://healthinsightuk.org/2020/12/23/the-long-march-by-patients-to-prove-that-the-official-treatment-for-mecfs-was-wrong-and-damaging-repost/
Who would have thought? We knew that National Institute for Health and Care Excellence (NICE) – the executive branch in the U. responsible for producing treatment guidelines – was reconsidering its guidelines for ME (ME/CFS, chronic fatigue syndrome). Still, it came as a surprise when its draft guidance made explicit Read more…
“Profile of circulating microRNAs in myalgic encephalomyelitis and their relation to symptom severity, and disease pathophysiology https://www.nature.com/articles/s41598-020-76438-y?fbclid=IwAR3LphYMqzLHxrPpSoxFwYqs15J8x8LSTKvspThsTjiy8v6orYWKmtkgfFw
For the past 30 years, still another group has suffered from the trauma of an illness and then society’s reaction to their disability. The illness is chronic fatigue syndrome. These patients, who prefer the less-stigmatizing term myalgic encephalomyelitis, have a very similar predicament to many COVID long-haulers. Because most primary Read more…
The Scottish Govermnet have provided an email update on implementing undertakings given by the Cabinet Secretary to the Scottish Parliament Petitions Committee. The main poits being – 1.In light of the forthcoming NICE review the Scottish Government has advised that people should not be pressed into accepting unwanted Graded Exercise Read more…
As an immediately relevant and useful tool for medical professionals and students receiving notice of these updates, it would be effective to include reference to the following online CPD module for improving basic practice approach for patients presenting with symptom profiles fitting ME & CFS, and also for many presenting Read more…
Thoughtful post by Naomi Whittingham who reflects on living through the lockdown as someone who has effectively had to live through their own lockdown due to severe ME for decades https://alifehidden.com/2020/04/09/lockdown
As charities supporting people with M.E. we have been actively campaigning for NICE to remove the recommendation of Graded Exercise Therapy (GET) and Cognitive Behavioural Therapy (CBT) in the guideline for M.E./CFS. Patient surveys conducted by charities and groups including Forward-ME have repeatedly shown the harm that can be caused Read more…