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I am writing on behalf of the Scottish Government’s National Care Service Division, to inform you of two engagement sessions that we are running later in April/early May, and to ask if you could cascade the information to anyone who might be interested in taking part. Scottish Government officials will Read more…

Most people get the Winter Fuel Payment automatically if they are eligible. Winter fuel payment 2023

The 25% ME Group is campaigning for better care to prevent malnutrition in people with severe ME. The #EndMalnutritioninME campaign has a Twitter account. Follow us at @MalnutritionME. Thank you to all health professionals who care for people with #SevereME. #NHS75 Read this article to understand how to prevent malnutrition Read more…

Participation request! Please help the Norwegian ME Association (Norges Myalgisk Encefalopati Forening) gather crucial information about ME/CFS by filling out their survey: The Norwegian ME Association has developed this excellent survey to fill knowledge gaps about the course of illness with ME/CFS. This effort will help inform policy decisions and Read more…

Implementation Statement from The National Institute for Health and Care Excellence NICE has today, International ME Awareness Day (Thursday, 12 May 2022) published its implementation statement which sets out the practical steps needed to put its recent guideline on the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome Read more…

James Lind Alliance Priority Setting Partnership – Results: The Top 10+ priorities for research around ME / CFS have been identified by the Partnership. These priorities have been determined as a result of two surveys and workshops engaging with people living with Myalgic Encephalomyelitis, their families and carers, and health Read more…

ME Awareness 2022 “Core Guidance NG206: Key extracts from the ME/CFS guideline published by NICE October 2021, with a focus on changes that are required and the care and support of severely affected patients. Also highlights the health professional’s duty, in complying with the law on informed consent, to explain Read more…

We are very disappointed to hear of the ‘pause’ in publication of the NICE ME/CFS Guideline, already delayed in April. Following the hard work of the Guideline Development Group, we received news of the further delay of guideline publication with both dismay and profound concern for practitioners, their organisations and Read more…