Having Severe ME/CFS: A Report From Norway

In 2018, the Norwegian ME Association undertook a large survey of severely ill ME patients. We wanted to look at symptom burden and disease severity, access to help and care, and how the carers experienced their condition. The answers we received were shocking, showing both how serious the disease is, how few receive adequate care and help, and the enormous burden of care for carers. We published a large report in Norwegian in 2020, and in 2023, we published an English Language paper in the Journal of Clinical Medicine.

https://www.healthrising.org/blog/2023/03/13/severe-chronic-fatigue-syndrome-norway/